The BRCA 1 and 2 genes are present in everyone, but in some people they can be altered. These alterations can lead to an increased chance of developing breast and/or ovarian cancer. Women who carry an alteration in the BRCA1 or BRCA 2 genes have up to a 44% and 17% lifetime risk of developing ovarian cancer, respectively.
If you test positive for a BRCA 1 or 2 gene alteration, the most effective way of reducing your risk of ovarian cancer is to have preventative surgery. This surgery is often referred to as risk-reducing bilateral salpingo-oophorectomy (RR-BSO), during which both ovaries and fallopian tubes are completely removed.
For many women, the decision to undergo preventative surgery is a difficult one, particularly if you find out that you have a BRCA gene alteration ahead of having completed a family. Any woman undergoing this surgery would not be able to have children and would experience an early menopause.
Find support
We understand that getting a BRCA 1 or 2 diagnosis can be very difficult. There is support and we have listed some of the incredible charities and support groups that may be able to help you and provide you with additional support.
⦁ For Prevention and Awareness of Ovarian Cancer: The EVE appeal
⦁ Support for BRCA and genetic testing: BRCA Chat, BRCA Umbrella
⦁ For Patient support: Ovacome (UK); Target Ovarian Cancer (UK); Olivia (EU)